Home | Press Releases | Contact Us Blog | FAQs Donate Today to Kids Wish Network
Vote for your favorite Magical Moment

Tomball girl with rare disorder gets Disney World wish granted

June 22nd, 2010

A young Tomball girl, Haley, suffering from a rare progressive brain condition, recently had her wish to visit Walt Disney World granted thanks to Kids Wish Network and several sponsors from Texas and Florida.

When Haley was born, she showed no brain activity and was kept in the hospital for three months. During that time, Haley was diagnosed with a rare condition, Progressive Basilar Invagination of the Spine. This condition causes the spine to calcify, effectively “strangling” the brainstem. Because of her condition, Haley has endured eight surgeries to the base of her skull and to the top of her spine to relieve the extreme pressure that builds up in her skull by chipping away at the bones in the area.

Due to the condition of her spine, Haley’s head movement is limited and required her to wear a halo device in order to keep her head straight; she was just recently able to remove the device. In addition, Haley also suffers from Spina Bifida, a birth defect in which the spinal column fails to close completely before birth, often resulting in paralysis. Because of this, Haley has no feeling in her legs, is confined to a wheelchair and must wear leg braces to straighten and stretch her legs.

While talking to a Kids Wish Network professional fundraiser, Haley’s grandmother mentioned the struggles her granddaughter has suffered through since her birth. The caller made note of Haley’s name and referred her to national children’s charity Kids Wish Network so that she might have a wish granted. The professionals at Kids Wish Network followed through and it wasn’t long before Haley was telling a Wish Coordinator that she wanted to see Disney World.

When asked why her daughter picked Disney World for her wish, Haley’s mother, Michelle, laughed and said, “She just absolutely loves Disney—Mickey Mouse, Minnie…everything about it, she loves. It’s just what she wanted.”

 According to Michelle, from the start of the trip to coming home from Disney World, everything was wonderful for Haley and their entire family. While in Orlando, the family stayed at the Royal Plaza Hotel and enjoyed dinners every evening, thanks to the planning of Haley’s Wish Coordinator and the generosity of the sponsors.

During their four day stay in the Sunshine State, Haley and her family visited every park Haley had hoped to, including Universal Studios and Islands of Adventures, Disney’s Hollywood Studios, Epcot Center and the Magic Kingdom.

 “It was all amazing,” said Michelle. “It was such a nice break from reality. The characters and staff everywhere, at the parks and at the restaurants, treated us like royalty. It was such a wonderful trip.”

Though everything was exciting for Haley, her biggest thrill came from meeting her favorite characters in person, including Mickey Mouse, the Disney princesses, the characters from Toy Story, Barney, Scooby Doo and Shaggy.

“Everything we did was amazing,” said Michelle of the trip. “The Monday before we left, we were in the emergency room because Haley was having head pain. It has just been such a hard time for us. This was a well-needed break. She (Haley) had the time of her life.”

Tomball Magnolia Tribune
Tomball, Texas
Published: 06/22/10
Source:

http://www.tribunenews.com/news/local-news/1178-tomball-girl-with-rare-disorder-gets-disney-world-wish-granted.html

Milford boy gets his wish

May 17th, 2010
MILFORD —

When Kristina Lambert asked her 10-year-old son Sean what he would have if he could have one wish, his answer shocked her, to say the least.

“His response was, ‘I want to see the presidents,”‘ said Lambert, 35, referring to visiting the graves of United States presidents. “And when I asked why, and he said, ‘Because they have done a lot for us,’ I was pretty surprised.”

It all began about a year and a half ago. Lambert had been researching different organizations across the country that grant the wishes of children with life-threatening diseases.

At the age of 4, Sean was diagnosed with hypotonia, a disorder that causes low muscle tone, often involving low muscle strength. At the time she began her research, Lambert did not know what Sean’s one wish would be or if he would even qualify.

Then she found the Kids Wish Network, based in Florida. When she learned there was a chance Sean could qualify, she asked for his wish.

“But I didn’t say anything about Kids Wish Network, because I didn’t want to get his hopes up and then not have him qualify,” she said.

Sean’s fondness for the past leaders of the U.S. came after he took part in a play at his school, Bi-County Collaborative, in Franklin. The play was about American patriots, and Sean played Thomas Jefferson.

In December 2009, the Lamberts received a letter from Kids Wish Network, saying Sean had made it through the first qualifying stage. The waiting period to receive final confirmation was four to five months.

Then in late January, the Lamberts received another letter; Sean was going to get his wish.

“I was thinking that is why they pushed it through so quickly,” said Sean’s father, Dennis Lambert, 46. “Because it wasn’t the average wish to go to Disneyland that everyone says. They probably looked at it and said ‘Hey, this is pretty unique. Let’s go with this.’ ”

So Sean, his parents and younger brother Dennis, 7, traveled by car to the Washington, D.C., area. Their trip was April 13-19, with Sean visiting and placing roses on the graves of George Washington, Thomas Jefferson, Woodrow Wilson, William Taft and John F. Kennedy.

The family had private tours of Arlington National Cemetery, Thomas Jefferson’s home Monticello, George Washington’s home Mount Vernon and the Capitol building.

The Lamberts also visited the Washington Monument, National Cathedral and the National Zoo.

“It was amazing,” Kristina Lambert said. “All the places that had ropes or gates, they opened them for Sean.”

The organization that made it all possible, Kids Wish Network, is based in Holiday, Fla. Started in 1997, its programs grant about 800 wishes annually to children between the ages of 3 and 18 with life-threatening diseases.

“This was a first for us,” said Jill Atchison, Sean’s wish coordinator. “He actually put a rose on each of the president’s graves, which was a nice little addition.”

But the roses were not just for the presidents. While visiting Arlington National Cemetery and the graves of Kennedy and Taft, the Lambert family came upon the funeral service for U.S. Marine Corps Sgt. Maj. Robert Cottle, 27, who was also a member of the Los Angeles Police Department S.W.A.T team.

Cottle was killed in Afghanistan on March 24 while on Marine Reserve Duty. About 25 members of the Los Angeles Police Department were at the services in full uniform.

Sean gave the officers a rose to put on the officer’s grave at Arlington, and in return, he received a medallion from the LAPD Honor Guard.

“The officer he gave the rose to said that because Sean showed honor to their family, he was now a part of it,” Kristina Lambert said. “He will give people the world if he could.”

Although the experience of a lifetime lasted only a week, the Lamberts plan to visit the graves of at least two more presidents, John Adams and his son John Quincy Adams, both of whom are buried in a family crypt in Quincy.

“It was amazing,” Kristina Lambert said of the trip. “It was above and beyond our belief.”

Milford Daily News
Milford, Massachusetts
Published: 05/16/10
Source:

http://www.milforddailynews.com/topstories/x1773732428/Milford-boy-gets-his-wish?img=2