Name: Joey Age: 10 State: WI Before he was born, it was discovered that Joey suffered from a condition called Hydrocephalus. Also known as “water on the brain,” Hydrocephalus occurs when there is an excessive buildup of cerebrospinal fluid in the skull that causes increased pressure over time. In order to drain the fluid, Joey’s [...]
Name: Haley Age: 6 State: TX When Haley was born, she showed no brain activity and was kept in the hospital for the first three months of her life. During that time, Haley was diagnosed with having a rare condition called Progressive Basilar Invagination of the Spine. This condition causes the spine to calcify, effectively [...]
Name: Michael Age: 5 State: New Jersey In 2008, after almost constant testing, 5-year-old Michael was diagnosed with a rare genetic disorder called Williams-Beuren Syndrome. This is a neurodevelopmental disorder that leads to various developmental delays and physical handicaps. In addition, Michael also has a condition called chronic intestinal pseudo-obstruction. This condition causes many different [...]
Name: Austin Age: 5 State: PA When he was just an infant, Austin was diagnosed with having two blood disorders: Type A Hemophilia and Von Willebrand Disease. Both disorders cause a lack of clotting in the blood and cause much blood loss with even the smallest of cuts. Because of these, Austin must have every [...]
Name: Triniti Age: 6 State: MD Right after she was born, Triniti was diagnosed with having a blood disorder called Sickle Cell Anemia. This disease causes restricted blood flow to the body’s organs and those suffering with Sickle Cell Anemia experience severe episodes of pain and eventual organ damage; they are also at high risk [...]
A four-year-old Alpena girl had her wish come true earlier this month with the help of Kids Wish Network, a national charity that grants wishes to children with life-threatening illnesses. On Jan. 17, Marissa Powell returned from a five-day trip to Disney World with her mother, Karmen, grandmother, Nyla Huggler, and six-month-old sister, Hailey. When [...]
Name: Zane Age: 7 State: MN Seven-year-old Zane was diagnosed with Cerebral Palsy at the tender age of one. Since then, he’s been completely dependent on other people and devices. Zane is confined to a wheelchair most of the day and must use an alphabet board and a communication device for talking. During his trip [...]
Name: Sasha Age: 13 State: MD Sasha was born with sickle cell disease, a disease in which the red blood cells created in the bone marrow are crescent shaped and have a difficult time passing through the body’s blood vessels to reach the body’s tissues. Those suffering with this disease experience severe episodes of pain [...]
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