At 2 and ½ years old, Drew started hemorrhaging and was diagnosed with both Mu Heavy Chain Disease as well as the rare genetic disorder called X-linked agammaglobulinemia, or XLA. These two conditions destroy his body’s ability to protect itself from infections by blocking the production of antibodies. For the rest of his life, Drew must take a strict daily regimen of antibiotics and must endure a painful 2 to 3 hour IV drip with immounoglobin, or antibodies, in it once every three weeks.

For his only wish, Drew asked if he could be a Lego designer for a day. While in Legoland, California, Drew got to experience what it was like to design his favorite toy and he thought it was completely awesome. He made two Lego versions of himself (one of which he got to leave as a secret legacy in the New York City tableau in Miniland USA), he made his own rocket with launch pad and he even got to help out with a “LEGO Emergency!” What a trip!

Nine year old Evan has a condition called congenital melanocytic nevus, which results in a birthmark covering over 35% of his body. Just last year, some of this was found to be cancerous with spindle cell melanoma. This rare form of melanoma is locally aggressive and tends to have a high recurrence rate even with treatment. Evan has spent much of his young life in and out of hospitals and has undergone three surgeries for mass removal and skin grafts. He is now scheduled for yet another surgery. Though he has yet to endure chemotherapy, he is awaiting his doctor’s decision to start in order to shrink the tumor.

Evan was so ready to visit LegoLand that he created his own in-park itinerary complete with a 38 point agenda of things to see and ride! As a bonus, the little Lego fanatic was given a behind-the-scenes tour! “That was the highlight of a highlight trip,” said Evan’s father. According to Evan, the special tour was “amazing!” While on the tour, he had the chance to see how Legos are made and even got to make his very own Legos! The souvenirs he received from his backstage tour also sent him into a collector’s frenzy of joy; these same collectable Star Wars bricks are now his absolute favorites and he will continue to collect them indefinitely. To put it simply, Evan was hooked. “I want to work there,” he says bluntly.