Park Hopping Palooza

July 20th, 2015

“Hannah’s most treasured memory was experiencing Disney” It took nine years for doctors to officially diagnose Hannah with Cockayne syndrome, a rare neurodegenerative disorder characterized by growth failure, impaired development of the nervous system, abnormal sensitivity to sunlight, eye disorders and premature aging. There is no cure for this disease, and the prognosis is poor. […]

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