Name: Hope Age: 15 State: NC Hope has been diagnosed with a disease called spina bifida, a birth defect that occurs when a portion of the spinal column fails to develop and close properly. In Hope’s case, her spina bifida derives from being born a partial, conjoined twin. The condition has caused Hope to undergo [...]
Name: John Age: 5 State: OH John has acute lymphoblastic leukemia, which is cancer of the white blood cells. After his diagnosis in May, John has endured weekly chemotherapy treatments and will continue to do so for three years. Unfortunately, though his body is responding well to the treatments, it is taking a toll on [...]
Name: Jazlin Age: 7 State: KS Jazlin was born with a condition called holoprosencephaly that occurs when the brain fails to separate into two hemispheres during fetal development. This condition caused Jazlin to have a cleft palate and she was also born without a bone in her nose. Because of her condition, Jazlin cannot speak [...]
Name: Kyle Age: 3 State: NY When he was just two weeks old, Kyle’s doctor told his mother that he had a rare condition called methylmalonic academia. This is an inherited metabolic disorder in which the body cannot break down certain proteins which build up and attack the body’s major organs. This can lead to [...]
Name: Cassie Age: 17 State: MS Cassie is a vibrant, young, country girl! She loves literature, art, and horses. Cassie enjoys hunting with her brothers and also loves baseball and football. She is a big fan of the New Orleans Saints as well as the music of Lindsey Haun and Brantley Gilbert. She is described [...]
Name: Jacob Age: 7 State: TN In March of 2010, young Jacob was diagnosed with cystic fibrosis. His family noticed that he was showing signs of abdominal pain and would remain hungry. After having blood work and stool testing done, it seemed as though nothing was wrong. A second doctor did another set of tests [...]
Name: Jonathan Age: 10 State: FL When he was 3 months old, Jonathan’s doctors discovered that he had Duchenne muscular dystrophy, which is a progressive form of muscle weakness, just like his older brother. Jonathan must sleep with braces on his legs at night and he endures physical therapy sessions throughout the week. He also [...]
Name: Alana Age: 6 State: AL Shortly after being born, Alana was diagnosed with a disease called cerebral palsy. This condition includes a group of disorders affecting both the brain and nervous system functions. The disease impairs activities such as movement, hearing, seeing, and thinking and can often cause a wide range of other anomalies [...]
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