“She suffers from superior mesenteric artery syndrome & required multiple surgeries”
Only a few hours after Allison was born, she started vomiting, and her parents discovered that she could not tolerate formula. Weeks later, doctors reported that she was suffering from severe reflux, necessitating an NG tube and diagnosed her with failure to thrive. Over the next two years, Allison was in and out of the hospital constantly with ear infections and respiratory problems. At that point, she had already had four sets of tubes put in her ears, but the reflux was eating away at her eardrum. Allison also had her tonsils and adenoids removed, but the procedures didn’t seem to help as she continued to regularly suffer from infections. Her doctors decided to perform a surgical procedure on the two year old to treat gastroesophageal reflux disease (GERD) and a hiatal hernia surgery to take the upper portion of her stomach and tie it off at the lower end of her esophagus. The purpose of these surgeries was to make Allison unable to vomit and prevent reflux from coming up through her esophagus. Her doctors also inserted a g-tube in her stomach for drainage.
When Allison got older, she had to have the same surgeries repeated in order to treat her condition. Her doctors found that she had herniated since the last time they operated, causing her to experience agonizing pain. Allison was unable to eat and lost a significant amount of weight. Her concerning symptoms prompted doctors to perform a spinal tap, but the puncture wound from the procedure did not heal correctly and was leaking spinal fluid as a result, necessitating a patch to seal it. After continued stomach issues and countless tests later, Allison was finally diagnosed with Superior Mesenteric Artery Syndrome, a digestive condition that occurs when the first part of the small intestine is compressed between two arteries (the aorta and the superior mesenteric artery). This compression blocks the first part of the small intestine and causes abdominal pain, bloating, and severe nausea. To alleviate the symptoms, Allison had a nasal tube that passed into her stomach and a feeding tube to provide her body with enough calories.
Allison is a brave and determined little girl who adores reading, baking, and spending time with her big brother. Her other favorite pastimes include swimming in the ocean and collecting shells on the beach. Unfortunately, due to the nature of her lifelong illness, Allison has often had to forgo the activities she enjoys most.
Kids Wish Network is hard at work planning a once-in-a-lifetime experience for Allison; make sure to stay up to date by checking back soon for all of the dreamy details of her fabulous wish!