Tyler’s Fight Against A Rare Inherited Disease

Wish kid Tyler’s Fight Against A Rare Inherited Disease - Kids Wish NetworkFamiliar Adenomatous Polyposis (FAP) is a rare inherited condition that causes extra tissue (polyps) to form throughout the entire gastrointestinal tract. If left untreated, the polyps are likely to become cancerous.

The illness was first diagnosed in Tyler’s grandfather and then also in Tyler’s mother. Although the diagnosis was early enough for his grandfather, sadly it was not for Tyler’s mom, and she passed from the disease.

With two family members known to have the FAP, others were tested for the genetic marker for it. It was found with Tyler. Additional testing for Tyler showed the presence of polyps and necessitating surgery to remove large polyps that were found in his lower intestine. Tyler’s health remains in a “watch and see” situation.

Tyler is a loving and compassionate kid who loves to serve others. He would prefer to have nothing as long as everyone else had what they wanted. At his young age, Tyler already feels a calling to become a “preacher”.

We do know that Tyler is a huge fan of Keith Urban and his music, and we think it’s about time he receive something special in his life..

That wish sounds like something Kids Wish Network will work to fulfill; check back for more details about his wish!

 

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Kids Wish Network is a charitable organization dedicated to infusing hope, creating happy memories, and improving the quality of life for children having experienced life-altering situations. Kids Wish Network assists children and their families through several key programs.