Sysha was only 8 days old when her mother noticed a yellowish drainage coming from her orifices. She immediately rushed her infant daughter to the hospital where she was put on antibiotics and sent home. Sysha remained a “fussy” infant, crying most of the time. She was often prescribed antibiotics for what was thought to be a viral infection. Finally, after two years of Sysha continuing to not appear healthy, she was taken again to another doctor for a second opinion and more testing was done. It was through her bloodwork results that Sysha was given a diagnosis of hypogammaglobulinemia. At that point, she was given a transfusion to boost her immune system. She still receives those transfusions every three weeks with the port for the transfusion needing to be replaced every two months.
Hypogammaglobulinemia is an immune disorder characterized by a reduction in antibodies that help fight infection. It is a type of primary immune deficiency disease. The common clinical feature of hypogammaglobulinemia relates to a predisposition toward infections that normally are defended against by antibody responses. The disease may also present itself as growth retardation, abnormalities of lymphoid tissue and organs, or pulmonary, cardiovascular, or neurologic abnormalities.
If she could give anyone a gift, this kind and loving child just wants to give her mom a big hug and kiss….and present her with a manicure! We’re hoping to add that kind of spa treatment and more to a wonderful travel adventure to San Francisco for Sysha.
Kids Wish Network will make this wish trip a glamorous event for Sysha; check back for more details about her wish!