Devastating Effects of Muscular Dystrophy

Wish Kid Allanie - Kids wish network

“Allanie’s body was so bent over that her frame was u-shaped”

As a child, Allanie always had trouble walking and problems with her facial muscles. At age ten, she had a full medical work up that led to her being diagnosed with muscular dystrophy, a hereditary condition marked by progressive weakening and wasting of the muscles. Soon after, Allanie had her first surgery to correct the muscles in her drooping cheeks. Two years later, she underwent a second procedure called a spinal fusion surgery to unite the vertebrae in her spine. By permanently connecting the vertebrae, it eliminated motion between them and corrected the curvature in her spine. Allanie also had a rod placed in her back to improve her posture. Her body was so bent over that her frame was u-shaped. With only about a foot between her head and her lower body, she had never been able to sit up straight before. Prior to the surgery, Allanie relied on a walker to aid in her mobility due to the awkward and debilitating positioning of her body, but as a complication of the surgery, she was left unable to walk and now uses a wheelchair.

While there is no cure for muscular dystrophy, medications and therapy can help manage symptoms to try to slow the progression of the disease. Initially enrolled in physical therapy at school, Allanie had to be pulled out of PT class when she switched to homeschooling after contracting pneumonia for the seventh time. The last time she came down with pneumonia, she had to be hospitalized in the PICU for six long months. Allanie’s doctor is currently arranging homebound PT treatment to accommodate her unique situation.

At 17, Allanie is a funny, tough, and charismatic teen who loves spending time with her sisters. Her passions for movies, books, and music have made her a champion at trivia games. She would stay up all night watching horror flicks, reading The Hunger Games or Divergent, and listening to 5 Seconds of Summer if her family would allow it. Allanie’s dream is to become an author one day.

Kids Wish Network is hard at work planning a once-in-a-lifetime experience for Allanie; make sure to stay up to date by checking back soon for all of the exceptional details of her stupendous wish!

 

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Kids Wish Network is a charitable organization dedicated to infusing hope, creating happy memories, and improving the quality of life for children having experienced life-altering situations. Kids Wish Network assists children and their families through several key programs.