“It was truly a magical experience”
At 10 months old Journey was admitted to the hospital because she was losing a pound every day. Doctors were eventually forced to place a feeding tube to help Journey get the nutrients she needed. Years later, Journey was finally diagnosed with Leigh’s Disease, a progressive, neurometabolic disorder characterized by visible necrotizing (dead or dying tissues) in the brain. Doctors are still running tests to determine the best course of treatment for Journey.
Kids Wish Network was happy to give Journey a once-in-a-lifetime vacation to Disney World where she was able to meet all of her favorite princess characters. In addition to Magic Kingdom’s spinning teacups and Prince Charming Regal Carrousel, Journey ventured to I-Drive to experience some of Orlando’s newest attractions, compliments of Merlin’s Magic Wand. She took a 400-ft flight on the Orlando Eye observation wheel which provides breathtaking views of Central Florida in all directions, with sights of downtown Orlando’s skyline. Then Journey walked the red carpet to mix and mingle with her favorite A-list celebrity wax figures at Madame Tussauds. The Sea Life Orlando Aquarium was next on Journey’s agenda, where she strolled through 360 degree Ocean tunnels and was able to view exhibits of over 5,000 sea creatures.
A gourmet dinner at Portobello gave Journey a taste of old world flavors from the Italian countryside, while a hearty meal at Tony Roma’s promised comfort foods that double as staples of the Deep South. Surprise guests arrived at Tony Roma’s to greet Journey from Once Upon a Party. They were none other than her favorite snow queen and princess based on the characters from Frozen.
A trip to Disney World was a dream come true for Journey and KWN could not have been happier to make it a reality for her.
Kid’s Wish Network would like to thank the following Guardian Angel sponsors for their participation in Journey’s wish:
• Compassion Partners
• Merlin’s Magic Wand
• Once Upon a Party
• Enterprise Rent a Car
• Wyndham Lake Buena Vista
• Tony Roma’s
Tags: apraxia, Chili’s, Compassion Partner’s, Disney World, Enterprise Rent a Car, frozen, incurable illness, Leigh's Disease, Merlin's Magic Wand, Once Upon A Party, Portobello, Princess Elsa, texas, Tony Roma’s, TX, Wyndham Lake Buena Vista