“This trip to Nashville was the best, and he will never forget it”
Diagnosed at birth with hemangiomatosis, Christian was born with hundreds of skin lesions called hemangiomas, all over his body. After some testing, doctors discovered that these lesions covered Christian’s internal organs, eyes, and brain. The lesions on Christian’s brain began to grow and caused fluid to build-up, resulting in more medical complications. Christian was then diagnosed with cerebral palsy, began experiencing seizures, and needed a shunt implanted in his brain.
He started taking steroid medication, and doctors used a laser treatment to shrink the lesions on the outside of Christian’s body. The combined treatments were successful, however lesions remained on Christian’s brain and in his eyes. For this, he underwent multiple eye surgeries, but doctors are concerned that more could cause him to lose his sight. As a result of the cerebral palsy, Christian has undergone two surgeries on his right arm in an attempt to regain movement, but both were unsuccessful. He wears a brace on his right foot to maintain his balance and takes seizure medication to manage his illness.
More than anything, Christian loves to sing country music. He looks up to celebrities like George Strait “because he has good values and cares about others.” For his wish of a lifetime, Kids Wish Network sent Christian to Nashville, the country music capital of the nation. He felt beyond special that Kids Wish Network arranged for him to spend time with up and coming country music artist Noah Garner who acted as Christian’s personal tour guide around town. Garner took him to the George Jones museum, Choices for dinner, and to Tootsie’s Orchid Lounge where Garner regularly performs during the week. Christian was invited on stage with Noah to sing George Strait’s “Check yes or no.”.
During his whirlwind Nashville trip, Christian stayed at the Union Station Hotel. He loved how “fancy” the experience was and felt like a VIP guest in the lavish surroundings. Christian was treated to a wonderful dinner and showered with gifts at the Hard Rock Café, and then invited back for karaoke the next night.
The Johnny Cash Museum was equally generous by hosting Christian for lunch, giving him a tour, and surprising him with CDs and souvenir t-shirts. Christian’s favorite present came from Nashville Cowboy. The store presented him with a brand new pair of authentic cowboy boots. He wore the boots the entire trip with a megawatt smile on his face. He also took a relaxing Sugar Creek Carriage ride around downtown Nashville to see the sights, participated in an Escape Game, and toured the Ryman Auditorium.
“This was the best trip, and he will never forget it,” said Christian’s mom Denise. “The time I got to spend with my son was amazing. His eyes lit up, and he had a smile on his face during the whole experience.”
Kids Wish Network would like to thank the following sponsors for their participation in Christian’s wish:
• Noah Garner
• Union Station Hotel
• Johnny Cash Museum
• Sugar Creek Carriages
• Hard Rock Café
• Ryman Auditorium
• Escape Game
• Nashville Cowboy
Courtesy of WKRN News 2 ABC Nashville, TN
Tags: cerebral palsy, Escape Game, Hard Rock Café, hemangiomatosis, Johnny Cash Museum, Nashville Cowboy, Noah Garner, Ryman Auditorium, Seizure disorder, spastic diplegia, Sugar Creek Carriages, Union Station Hotel