“Aly’s mouth absolutely dropped when she met Ariel.”
Aly was diagnosed with a dangerous and extremely rare life-threatening condition called juvenile dermatomyositis in October 2011 when she was 3 years old. This condition is a presumed autoimmune dysfunction that results in muscle weakness among other complications.
When Aly began showing a range of odd symptoms such as crying spells, rashes, an inability to move her legs and trouble swallowing, doctors couldn’t determine an immediate cause. Her frail body spent months deteriorating when, finally, a facial rash lead to a clear diagnosis.
Doctors began with an extremely high dose of oral and intravenous steroids and weekly blood-product infusions (IVIG). The medications took a toll on her appearance, stunted her growth and caused mood swings, but all the hardship has not been in vain. After two years, Aly is finally off the oral steroids and her six-hour IVIG infusions have been reduced to monthly visits.
“Sometimes Aly’s mad or sad about her condition,” says mom Jennifer. “But mostly she’s accepting of her lot in life. Aly is smart and she’s brave; she endures stuff most grown-ups can’t.”
Even though she was slathered in sunscreen, Aly had a great time on her wish trip to visit Disney World and Universal Studios.
“Aly loved meeting Dora the Explorer”, says Jennifer. “But her mouth absolutely dropped when she met Princess Ariel. We had truly an amazing time on her wish. Thank you Kids Wish Network for making her dream come true.”
Kids Wish Network would like to thank all the generous sponsors that helped grant Aly’s wish:
- Royale Parc Suites
- Compassion Partners Program
- Chili’s Grill and Bar
- Smokey Bones Bar & Fire Grill
- Bahama Breeze
UPDATED Nov 2014: As of October 31st, Aly was considered in remission of her life-threatening illness although she still takes some medication as a precaution.