ERWIN N.C.: For 13-year-old Bobby Potter, having fun is a major priority. The Erwin, N.C., teen tries to fit in his favorite hobbies of video games and WWE in between battling his life-threatening illness. Thanks to Kids Wish Network, a Florida-based children’s charity, Bobby was able to have five full days of fun when his wish was granted to visit Universal Studios in Orlando, FL.
Doctors located Bobby’s first tumor when he was just six months old. He was taken to Duke University where the crushing diagnosis was announced: neurofibromatosis type 1 (NF1). This genetic disorder affects cell division and causes tumors to arise almost anywhere in the body. Often times these tumors appear along the pathways of the nervous system and can attach to organs and blood vessels.
At age 5, Bobby had two surgeries to remove multiple tumors and insert a metal rod in his back to combat the bone defects from his condition. Bobby’s young body continues to develop tumors throughout his system, from his brain to his feet. Doctors have discussed another operation to place a shunt in Bobby’s brain to drain excess liquid and release pressure resulting from the tumors.
These inoperable and painful tumors will continue to plague Bobby throughout his life, but recently Bobby got to put aside his worry and enjoy the magic behind the movies at Universal Studios thanks to Kids Wish Network.
The charitable organization sent Bobby on an all-expense paid wish trip to Disney World and Universal Studios where the Potter family enjoyed luxury accommodations, dined at the local eateries, and experienced all the parks had to offer. Bobby loved his first ride on an airplane and took in many 3-D attractions at Universal.
“Bobby had a blast,” recalls mom Rhonda. “Everything was marvelous. There are not enough words to describe how thankful we are.”
Kids Wish Network and Bobby’s family would like to thank all the wonderful sponsors who helped grant his wish: Calypso Cay Resort, Compassion Partners Program, Thrifty/Dollar Rent A Car, Pirates Dinner Adventure, Houlihan’s, Johnny Rockets, and Wonderworks.
Kids Wish Network is a Florida-based charitable organization dedicated to infusing hope, creating happy memories, and improving the quality of life for children having experience life-altering situations. Come experience the Kids Wish Network difference.