“It was the only time that our family has had together that has been focused on just having fun.”
Mary Clare was referred to a pediatric endocrinologist when doctors realized she was not growing. She was diagnosed with panhypopituitarism and adrenal insufficiency after testing was completed and doctors also found a Chiari Malformation with syringomyelia.
Panhypopituitarism is a condition of inadequate or absent production of pituitary hormones. It is frequently the result of other problems that affect the pituitary gland and reduce its function. As a result, Mary Clare has adrenal insufficiency, the failure of the adrenal glands to produce sufficient amounts of cortisol and aldosterone. Mary Clare’s Chiari malformation with Syringomyelia is the result of part of her skull being abnormally small or misshapen, compressing her brain and forcing it downward into the spinal column. As a result, Mary Clare has undergone decompression surgery in hopes that this would relieve the pressure on her brain.
When Mary Clare was given the opportunity to have a wish granted through Kids Wish Network she was so excited and asked to go to Disney World. To bring her dream to life, Kids Wish Network arranged an all-expenses paid trip to the parks of her dreams, Animal Kingdom, Sea World, and Magic Kingdom. Mary Clare’s favorite part of the trip was, “…the safari at Animal Kingdom! I love animals!”
“It gave us something for our family to look forward to. This whole process goes beyond just going on a vacation. It’s this understanding that people genuinely care about our daughter,” said Mary Clare’s mother, Tamara Matthias. “It was the only time that our family has had together that has been focused on just having fun.”
Name: Mary Clare
Illness: Panhypopituitarism and Chiari malformation with Syringomyelia
Wish: Visit Disney World
Wish Category: Theme Parks