When he was only 15-months-old, Aaron’s parents noticed that their little boy was wobbling when he walked, so they took him to a doctor. After a year of performing various tests and MRIs, doctors discovered that Aaron suffered from a rare genetic disease called ataxia telangiectasia (A-T). This disease is so rare that there are only about 500 documented cases in the country. A-T affects the cerebellum in the brain, which controls the body’s coordination, causing balance problems and difficulties with speech and vision. A-T also compromises the immune system, leaving it open to many infections, diseases and even causes a predisposition for developing cancer.
Aaron was able to walk up until a few years ago and he is now confined to a wheelchair for mobility. His speech, hand and head movements have all been affected by A-T and he suffers from tremors. There are no treatments for this disease yet, although Aaron is monitored and tested by many doctors.
Aaron’s parents belong to a support group of other families whose children suffer from A-T. One of these parents mentioned that her daughter had her wish granted through national charity Kids Wish Network and suggested that Aaron’s parents do the same; after reaching out to the charity and exchanging paperwork, Aaron entrusted his wish to meet the cast of his favorite TV show, “iCarly” to a Kids Wish Network wish coordinator.
Through the generosity of several local sponsors in Michigan and California, Aaron’s wish was granted. In addition to the meeting with the cast of “iCarly” on the TV set, Aaron and his family were also provided with accommodations, dinners in the evenings and other activities to enjoy in Hollywood.
When he arrived in Hollywood, Aaron was treated like a star everywhere he went, especially the Hard Rock Café, where Aaron and his family went for lunch.
“They really impressed us at the Hard Rock,” said Aaron’s father, Chris. “They doted on him pretty good.”
When it was time to head over to the “iCarly” set, Aaron was excited, but tried his best to act cool. While they were there, Aaron and his family got to watch the filming of an episode of “iCarly” and, between takes, Miranda Cosgrove, Nathan Kress, Jennette McCurdy and Noah Munck all came over to hang out with Aaron.
Although Aaron tried to act cool, you can see the excitement in his eyes in each and every picture taken during his wish trip.
“He lives for the moment,” said Chris of his son, Aaron. “He enjoyed it.”
For Aaron, his time in Hollywood with the cast of his favorite show will be remembered and cherished for years to come.
Kids Wish Network would like to thank the following for helping to make Aaron’s wish extra special: Nickelodeon, the cast of “iCarly,” St. Mary’s Church, Fruitport Christian Reformed Church, St. Patrick’s Church, Fruitport Lions Charities, Fraternal Order of Eagles #925, VFW Post 2326, Fruitport Police Department, Fruitport Fire Department, Edgewood Lutheran Church, Knights of Columbus Council 2975, Hacienda Hotel, Sizzler, Midway Car Rental, StarLine Tours, Hard Rock Café, A.L.S. Limo, Ripley’s Believe It or Not Museum of Hollywood and La Sirena Grill.