http://kidswishnetwork.org/2010/01/i-want-my-very-own-tinker-bell-bedroom/ Where dreams really do come true. Mon, 14 May 2012 18:48:07 -0400 hourly 1 http://wordpress.org/?v=3.3.2 http://kidswishnetwork.org/2010/01/i-want-my-very-own-tinker-bell-bedroom/comment-page-1/#comment-3197 Rhonda Sun, 22 Apr 2012 15:51:20 +0000 http://kidswishnetwork.org/?p=2242#comment-3197 Haley, and family. My daughter to has Vaters Association which consists of Tetralogy of Fallot 6weeks old, 4 problems with heart, Pulmonary valve replacemnent age 7, tethored cord release, 18 mths. bilateral absent radaii clubhand with no thumbs, she had a centralization of the rt. hand at under 2 years and was splinted since day one at Arkansas Childrens Hospital, we did not think we would meet anyone who had hand like kelli. So proud Haley go her wish. What was the proceedure called. It is a grueling proceedure when they remove the pins or it was for my daughter. She also has scoliosis but prior to needing surgery she stopped curving, Praise God, then she had ot prepare for heart surgery, she still may need another but for now doing best she can. I will be praying for Haley, she is shorter than most and 4ft. 3 age 17 she does not look 17 and her hand , the fingers do not bend, she is a trooper only wanting to help others instead of herself, I am sure your daughter may have the same qualities. God Bless you . It is a long road adn not sure it ever ends but it is the only road we know. Haley, and family. My daughter to has Vaters Association which consists of Tetralogy of Fallot 6weeks old, 4 problems with heart, Pulmonary valve replacemnent age 7, tethored cord release, 18 mths. bilateral absent radaii clubhand with no thumbs, she had a centralization of the rt. hand at under 2 years and was splinted since day one at Arkansas Childrens Hospital, we did not think we would meet anyone who had hand like kelli. So proud Haley go her wish. What was the proceedure called. It is a grueling proceedure when they remove the pins or it was for my daughter. She also has scoliosis but prior to needing surgery she stopped curving, Praise God, then she had ot prepare for heart surgery, she still may need another but for now doing best she can. I will be praying for Haley, she is shorter than most and 4ft. 3 age 17 she does not look 17 and her hand , the fingers do not bend, she is a trooper only wanting to help others instead of herself, I am sure your daughter may have the same qualities. God Bless you . It is a long road adn not sure it ever ends but it is the only road we know.

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