Name: Haley
Age: 3
State: Kentucky
About three months prior to her birth, Haley’s doctor discovered that she suffered from a deformity called a bilateral radial club hand. Her arms were curled up into her chest and, to try to correct the condition, her doctors had to break her tiny arms and realign them, inserting pins to keep them in the correct positions. Every year, Haley endures three to four surgeries to take out the pins and re-insert them. In addition to her deformity, Haley also suffers from a heart condition called patent ductus arteriosis, in which the connecting blood vessel between the pulmonary artery and the aorta stays open. Haley endured her first heart surgery at 6-weeks-old and will have to endure another one in a few years.
Haley’s wish was to fill her room with all things Tinker Bell, her all-time favorite fairy. The walls were painted a very “fairy” shade of purple with pictures of princesses, Tinker Bell and all of her fairy friends to match. Haley even received a Tinker Bell canopy bed, a play kitchen, a brand new purple rug and even a TV and DVD player with plenty of Disney DVDs for her to enjoy! What a “fairy” good wish, Haley!
Tags: tinker bell, Wish
Haley, and family. My daughter to has Vaters Association which consists of Tetralogy of Fallot 6weeks old, 4 problems with heart, Pulmonary valve replacemnent age 7, tethored cord release, 18 mths. bilateral absent radaii clubhand with no thumbs, she had a centralization of the rt. hand at under 2 years and was splinted since day one at Arkansas Childrens Hospital, we did not think we would meet anyone who had hand like kelli. So proud Haley go her wish. What was the proceedure called. It is a grueling proceedure when they remove the pins or it was for my daughter. She also has scoliosis but prior to needing surgery she stopped curving, Praise God, then she had ot prepare for heart surgery, she still may need another but for now doing best she can. I will be praying for Haley, she is shorter than most and 4ft. 3 age 17 she does not look 17 and her hand , the fingers do not bend, she is a trooper only wanting to help others instead of herself, I am sure your daughter may have the same qualities. God Bless you . It is a long road adn not sure it ever ends but it is the only road we know.