Ashley has a life-threatening illness known as Marfan syndrome, which is a disorder that affects the connective tissues of the body. Because this tissue is found throughout the body, it affects nearly all of the body systems, including the skeleton, eyes, heart and blood vessels, nervous system, skin and lungs. Ashley also has a heart condition for which she has had open heart surgery.
Recently, this courageous girl enjoyed a very special break away from her worries with a trip to Alaska! Coming from Florida to Alaska was quite a journey and Ashley was thrilled at every second. She and her family had a wonderful time sightseeing and just enjoying the splendor of the snow-covered state.