Alissa is a very active nine year old with a love for music. She enjoys singing at parties and dancing whenever she can. She’s a great story writer and loves trying her hand at roller-skating. She has an outgoing personality and a beautiful smile, which shines the brightest when she’s doing something that she enjoys.
Alissa also has Long QT syndrome. This is a heart condition that causes arrhythmia and frequent fainting. Alissa has had a defibrillator implanted in her chest to regulate her heartbeat, to detect cardiac arrhythmia and correct it by delivering a jolt of electricity. At one point, Alissa even had to undergo surgery to replace her defibrillator, which had broken inside of her chest. She cannot overexert herself in physical activities and also endures regular doctor’s appointments to check up on her heart.
Alissa had a great time at Disney World and at the Pirates Dinner Adventure! She got to dress up as her favorite princess and enjoy some real VIP treatment!