MILLINGTON, Md. – A 6-year-old girl suffering from a life-threatening illness has her only wish granted through children’s charity, Kids Wish Network. When she was born, Jessie was diagnosed with DiGeorge syndrome. This is a rare congenital disease whose symptoms vary greatly between individuals but commonly include a history of recurrent infection and heart defects. [...]
SILVER SPRING, Md. – A little girl with a life-threatening illness has all of her magical wishes come true when she visits Disneyland with a little help from Kids Wish Network. From the moment she was born, Ryann has suffered from an inherited blood disorder called Sickle Cell Anemia. Those suffering with this disease experience [...]
AMARILLO, Texas – A little boy with a life-threatening illness enjoys a whole day of shopping with a little help from Kids Wish Network. Four months after his birth, JaQualin was diagnosed with sickle cell anemia, which is an inherited blood disorder. Those suffering with this disease experience severe episodes of pain and eventual organ [...]
Name: Amber Age: 18 State: Texas Amber is a happy 18-year-old who was diagnosed with a neuro-developmental illness called Rett Syndrome at the age of three. This illness causes her to have seizures and has left her completely non-verbal. She relies on a wheelchair for mobility and needs assistance and supervision at all times. Amber’s [...]
Name: Amber Age: 7 State: Missouri Amber is a sweet little girl who suffers from an illness called Marfan Syndrome. This is a devastating condition that affects the connective tissues in the body. Amber relies on braces for mobility and has endured various surgeries in her short life. She has had open heart surgery and [...]
Name: Brandon Age: 17 State: California When Brandon was almost 2-years-old, he was diagnosed with Cerebral Palsy and a seizure disorder. CP is an illness in which the brain does not communicate with the muscles; symptoms include tight muscles, balance issues, poor coordination, and a delay in developmental skills such as walking and sitting. Brandon [...]
Well, the big day is very close now and I am super excited!! It is the 67th year of the CSX Santa Train and I get to go on it! How lucky am I??? This train ride has become a very memorable tradition for the many families living in the Appalachian Mountains. It’s an early [...]
This past week I had the opportunity to see what we do here – first hand. My son had to be hospitalized after a minor operation and he wasn’t the most in the best of moods. Usually a very active boy, he was confined to a hospital floor and anywhere he went, his IV pole [...]
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