Lincoln, NE – A little girl with a serious life-threatening illness has the vacation of a lifetime at Disney World, thanks to Kids Wish Network.
Lily is a precious four-year-old princess with a penchant for pixies. Her bright blue eyes sparkle when she plays with her favorite fairy toys and her bubbly laughter will cheer anyone’s heart. Lily loves collecting blocks and watching her favorite Disney characters. Her beautiful smile comes in a close second only to her playful personality.
Little Lily was born with Klippel-Trenaunay syndrome. KTS is a congenital medical condition in which the blood vessels fail to form properly. She was born with one leg three times the size of the other, and from the waist down, Lily has an abnormal growth of veins that grow without valves. These veins form masses that sometimes go right through her bones. In her four years, Lily has endured four de-bulking surgeries to remove excess tissue. These surgeries resulted in the loss of 10% of her body weight. Lily suffers daily pain, recurrent bouts of bleeding and is in and out of the hospital frequently.
Lily knew exactly what she wanted to wish for when she was given the chance: she wanted to meet her beloved Disney Princesses with their Mouse friend, Mickey, at the most magical place on Earth. Once referred by a social worker, it wasn’t long before Lily was on her way to Florida with her family.
Once there, Lily got to visit plenty of theme parks, including Disney’s Magic Kingdom, Epcot Center, and Hollywood Studios as well as Universal Studios and Islands of Adventure. According to Lily’s mom, Carrie, the favorite was definitely Magic Kingdom. It was there where Lily finally got to meet her idol, the mermaid princess, Ariel. After meeting the lovely princess, Lily was delighted and exclaimed, “Ariel has real skin!”
While at the Bibbidy Bobbidy Boutique, the Fairy Godmother asked Lily what she wanted to wish for, to which Lily replied that she had already gotten her wish and that she never wanted to leave. Since she’s been home, however, her mother says that “Lily is constantly talking about the trip. We developed pictures and she put together her photo album to take to preschool, physical therapy and to share with anyone else who will listen to her.”
According to Lily’s mother, “This was a wish come true for our little girl who has endured so much and will continue to do so. She worked hard in all her therapies to be strong for her wish. Without Kids Wish Network, our family would not have been able to provide this opportunity. One of the most exciting things for Lily was that she got to take her family with her. She was proud that she was taking her big brother to such a great place. Kids Wish Network thought of everything to make the trip an experience to remember. It was more than we could’ve ever expected.”