Greensburg, PA – Evan is a very special teen who has a condition known as Costello Syndrome. Costello Syndrome is incredibly rare and affects multiple organ systems of the body. Children with this disorder often experience difficulty with eating, developmental delays and heart abnormalities. Evan has had numerous surgeries throughout his young life. In addition, Evan has scoliosis.
Recently, this amazing kid enjoyed a much-needed break from his worries for a precious while thanks to his friends at Kids Wish Network, an organization that grants wishes to children with life-threatening illnesses. Evan was referred to the charity by someone in his community who had learned about Kids Wish Network and wanted to help. Evan’s mother, Sandra, was delighted to later find out that Evan was indeed eligible for a wish.
When Kids Wish Network wish coordinator, Jill, called to find out what Evan wanted to do for his wish, he didn’t hesitate. Evan wanted to go to Disney World.
From there, began Evan’s unforgettable adventure to the Sunshine State. His wish coordinator, Jill, took care of all the details, including airfare, hotel accomodations, theme park tickets and more. Wish Funding Specialist, Tanya, was able to garner the generous support of numerous people in the area who wanted to help sponsor Evan’s trip. It was going to be a spectacular experience.
During Evan’s special trip to Orlando, he took full advantage of his busy itinerary. He had a blast visiting the various parks in the area and also enjoyed some extra fun things Jill had planned. In addition to passes to Wonderworks, Orlando’s famous ‘upside-down’ museum, Jill also had reservations for the family at the Pirates Dinner Adventure Theater where patrons enjoy a delicious dinner while watching a live, interactive pirate show.
Evan returned home from his trip tired but with plenty of wonderful memories. It was definitely an experience this courageous teen will never forget.
Kids Wish Network would like to thank the following for helping to make Evan’s wish extra special: AFL-CIO, American Legion – White Oak, America Legion – Clairton, Mr. Domenic A. Bellisario- Attorney at Law, Fifth-Third Retirement Services, Highmark BCBS of Western Pennsylvania, Moose Lodge – Latrobe, Moose Lodge – Sutersville, Pacino’s Italian Ristorante, Pirates Dinner Adventure Theater, Plasterers’ & Cement Masons’ International Association of the United States and Canada, Royal Plaza Hotel, Tommy Bahama, Tri-State Conference of the OP&CMIA, VFW – Everson and Wonderworks.