HORN LAKE-Many kids delight in watching videos and listening to music. But for a beautiful little four-year-old girl named Miranda, these things are her entire world. This sweet child suffers from a rare metabolic disorder called nonketotic hyperglycinemia. This cruel disease has robbed her of her mobility, caused her to suffer from seizures and has left her with profound developmental delays. Miranda cannot speak, is confined to a wheelchair, uses a feeding pump, and requires nursing care. “When she was born, doctors thought there were no other children living with her disease,” said her mother, Robyn. “But we did some research and found out that wasn’t true.”
But even through all of her struggles, Miranda lights up with joy when she sees Barney on television or watches a Shirley Temple musical. She isn’t capable of holding toys or playing like other kids her age, but she does smile and point at things she enjoys, most of which are music and movies. So when Wish Coordinator Madeline Robinson of Kids Wish Network heard about Miranda and her love and need for audio-visual stimulation, she made the connection necessary to get her a new combination T.V. and VCR for her viewing pleasure. Madeline even provided her with her own personalized gift box complete with some jewelry, stuffed animals, music and even a singing and dancing tree. “She really loved the stuffed bunny because she can wrap her arms around it perfectly and press it up against her chest,” Robyn said.
“We noticed that she really seemed to respond one day when we were showing her sister Molly a Shirley Temple video, “ Robyn said. “She started kicking at the music. We think it might be a combination of the music and the movement. And she absolutely loves Barney.” Robyn feels that the larger television screen will be easier for Miranda to see and that she will just enjoy it more. Miranda’s condition might make it impossible for her to take a trip to see her favorite purple dinosaur in person or to dance and sing like her beloved movie star, but now, no matter what, she can visit with each of them anytime she wants to in her own living room. They can come through the T.V. screen larger than life with just the touch of a button.
Kids Wish Network would like to thank Sears in the Southland Mall in Memphis, TN for donating Miranda’s television at a discounted rate and helping to turn a little girl’s wish into a dream come true.
Kids Wish Network is a nationally recognized non-profit organization whose mission is to grant wishes to children who have life-threatening illnesses. If you know of a child between the ages of 3 and 18 who may be in need of Kids Wish Network’s wish granting services, please call (813) 891-9374 or toll free at (888) 918-9004. You can also visit Kids Wish Network’s web site at www.kidswishnetwork.org.